Public Accountability Report Public Accountability Report

Illinois Council on Developmental Disabilities
(Appropriated Spending in Thousands)
  FY 2018 FY 2017
Reporting Programs Expenditures Headcount Expenditures Headcount
Illinois Council on Developmental Disabilities $ 2,649.8 6.0 $ 2,343.9 5.0
Totals $ 2,649.8 6.0 $ 2,343.9 5.0

Totals may not add due to rounding.

Agency Narrative
The Illinois Council on Developmental Disabilities (ICDD) makes investments with local and statewide agencies, organizations, and individuals to attain the performance targets in the Five-Year State Plan so people with intellectual and developmental disabilities and their families can achieve independence, productivity, community integration, and inclusion in all facets of community life. ICDD promotes initiatives to coordinate services and supports, and provide assistance for individuals with intellectual and developmental disabilities and their families. This is done through 25 grant investments as well as staff activities. ICDD supports self-advocates in finding their voices and advocating for their needs through funding of the Illinois Self-Advocacy Alliance (the Alliance). The Alliance is a network of self-advocates that, through local action, improve their lives, change local service practices, and make contributions to their communities. They also work together to promote statewide needed changes in disability policy and practices. The Alliance currently reaches 15 counties statewide, and members sit on eight different government and nonprofit boards or task forces. Partners in Policymaking, another ICDD-funded project, is a leadership training program for adults with disabilities and parents of young children with developmental disabilities. This program (1.) teaches best practices for service provision so individuals and families know what to expect and (2.) teaches competencies needed to influence public policy. Over the next three years, this project will “graduate” at least 70 Illinois residents who will be equipped to be community leaders serving on policy-making committees, commissions, and boards. The 2017 12th Speak Up and Speak Out Summit grew in size and impact with 520 attendees, over 50 attendees reported having taken a leadership role in their agencies. This annual event provides education, training, and opportunity for individuals with intellectual and developmental disabilities to discuss issues of importance in their lives. ICDD also began a multi-partner project supporting work envisioned through the Department of Human Service Early Intervention Advisory Council addressing lead exposure in young children. Through advocacy of the partners, the Illinois legislature passed P.A.100-0723 updating Illinois public health’s lead reference level to five micrograms per deciliter to match the CDC’s. This project is piloting Early Intervention services to young children at risk due to lead exposure in two Child and Family Connections service areas. Employment continues to be a challenge. ICDD funds SEAT, a Supported Employment Action Team to advocate for improved supported employment options through the Division of Rehabilitation Services (DRS). SEAT completed listening sessions of over 160 Illinoisans. A SEAT Summit, in September 2018 discussed survey results with leadership from DRS, the Division of Developmental Disabilities, and the Illinois State Board of Education.